Cystic fibrosis patients dating each other

A real 'Fault in Our Stars' couple There are two infections which are particularly dangerous for CF patients — pseudomonas aeruginosas and burkholderia cepacia complex or B. Gunnar Esiason talks about the risk of cross-infection between CF patients. Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Your email address will not be published. You are each fighting your own fight. The dictums are for their protection, and McMullen says the benefits of guidelines outweigh the negatives.

But the negatives can't be overlooked.

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It's harder for people to "get support from each other. It has had an impact. Meeting the social needs of sufferers wasn't a problem when cystic fibrosis was first brought to the public's attention: Children weren't expected to live past their second birthdays. People like Joan Finnegan Brooks, 47, wasn't expected to make it to school age. Her brother died of CF when she was 9, but she has been very fortunate. She meets her need for connection with others like herself through her work -- she does consulting for companies that work in CF treatment -- and through working with people who have loved ones with CF, such as parents and caregivers in the Boston area.

She connects with others like herself mostly by phone and e-mail. And when they meet in person, they follow the guidelines very carefully. Lauren Beyenhof, 27, has a strain of cepacia growing in her lungs so she takes extra precautions -- she even wears a face mask when she travels on a plane. True, there is the slight chance she'll be seated next to someone else with CF, but mostly the mask is in place to protect her own deeply compromised lungs. A healthy person's cold germ could put her in bed for a month.

The Danger of Cross Infections for Those Living With Cystic Fibrosis

Beyenhof, who lives in San Diego with her husband, understands Small's need to connect. Before discovering an online community and creating a forum of her own, she had an "absolute craving" for the simplest interaction. The need was deep-seated. At 17, while being hospitalized for an infection, she befriended a boy of the same age. He and his brother both had CF.

Is cross-infection a problem is CF?

Although cystic fibrosis is a rare disease, in some schools there may be more than one that they be kept a minimum of 6 feet (2 meters) apart from each other . Jul 5, This video from the Cystic Fibrosis Trust in the U.K. discusses the dangers of cross-infection for cystic fibrosis patients. Cross infection is when two people living with cystic fibrosis (CF) meet and pass infections from one to another. Tagged Burkholderia cepacia complex, cross.

One day they piled into the same room to watch a movie. When the staff discovered what they were up to they "hit the roof" before separating the three. The year-old boy died soon after that. Through the Internet Beyenhof has made friends with CF sufferers in her area. She visits them, but, because of the deadly cepacia, wears a mask, gown and gloves.

She leaves little gifts for her acquaintances at the hospital, but they have to air out at the nurses' station for 24 hours to make sure there are no "live bugs" on them before being delivered. Beyenhof follows the rules of engagement, but has friends who choose like Small not to. She does not judge them. Then there were the camps for children. It was an unpopular decision at the time, but a necessary one.

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Do we segregate according to a single organism, as single strain or some combination of organisms and strains? I know it sucks! To order copies of Toronto Star articles, please go to: Never disregard professional medical advice or delay in seeking it because of something you have read on this website. This reaction seems altogether too simplistic.

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